September 8th is national lissencephaly day. Ashley Miller’s daughter, Mackenzie, was diagnosed with Lissencephaly when she was 10 months old.
On September 8th at 3pm, there is a community fundraiser at McNaughton Park to bring awareness about ‘smooth brain’.
Ashley says it’s not talked about in Canada is it is in the USA
The community fundraiser will start at McNaughtons Park, and walk to the parkette on Main Street to the BMO for a BBQ. All funds raised will go to the Ronald McDonald House. Ashley says anyone is invited to the community fundraiser for Lissecephaly and asks everyone wear blue or purple in support.
Lissecephaly happens in the early stages of pregnancy and is caused by an arrest in development. It is diagnosed during pregnancy or a little after birth, like in Mackenzie’s case. There is no cure for Lissecephaly. It is also commonly known as ‘smooth brain’. When an MRI is done on someone with lissecephaly, the brain image shows a smooth surface.
Written by: K. Close
