The third Lissencephaly Awareness event in Exeter will help raise funds for a local family and the Children’s Health Foundation.
Ashley Miller, whose daughter Mackenzie was diagnosed with Lissencephaly at 10 months old, is organizing the event on Sunday, September 8th. It will run from noon to 4 p.m. in the Exeter town hall parking lot and feature a carnival theme, with pizza and a bouncy castle for everyone to enjoy.
Lissencephaly is a rare brain disorder, also called “smooth brain”. It can cause seizures, trouble swallowing, muscle spasms, and developmental delays, with no known cure.
Half of the funds raised will help the Miller family install ceiling track lifts in their home, while the other half will go to the Children’s Health Foundation.
To learn more about Mackenzie, you can visit her “Mackenzie’s Story” Facebook page. Facebook
Written by: K. Milhomens
